World Hemophilia Day is celebrated on April 17 every year. The aim of this day is to increase awareness about this medical condition amongst people. Hemophilia affected people lack the factors that helps blood clot when we have a cut or bruise. In severe cases a hemophilic can bleed to death if specialized care and drugs are not administered in time.
The theme of 2012 is ‘Close the Gap’. It indicates closing of the gap in care of hemophiliacs that sadly is more of a norm than aberration. Although Hemophilia is largely genetic and not curable, early detection helps. Advanced treatment regimes include administration of clotting factors that can prevent, manage and control this condition. Patient support groups can share stories and strategies to make life simpler. Rising levels of awareness will ensure that society at large comprehends the issues involved and become more supportive towards hemophiliacs.
Have you a young one suffering from this condition? Try to get him stretch his imagination. Video games provide an alternative reality environment. It encourages role play, helps improve reflexes and promotes quicker decision making. Group therapies can help children get over the fear of needles and infusions. Hiding information from the child only worsens the situation. You can consider learning from video tutorials, flip cards and hemoaction online game provided by World Federation of Hemophilia.
Children will have questions. Why can’t I go to play? Why do I have to visit hospitals often? What is hemophilia? Of course you may find it difficult to explain things, but don’t discourage them. How else will they understand and accept? You can always search for the answers together and voila, a new activity for him.